I heard a few days ago that the Washington professor has formed a non profit making company, XXWorks, to develop ideas such as my bionic gloves which are to be one of the first projects. A team leader will be in touch.
I heard from a young lady today, who appears to be the project manager for XXWorks for my gloves. She has two other girls in the team.
She says that they are thrilled to be working with me on one of these first cases for XXWorks. She wants to talk over the Internet. I had told her we could have a videoconference from Australia.
Off to Australia, to stay with the same friends as last year and then onto Thailand, with Dr Long for a week, on the way home. Apart from requiring some assistance with dressing, provided my hands do not significantly weakened further during these intervening weeks, I should manage. After that I can only take it week by week. There are a lot of people out there willing to help, – occupational therapists, computer experts the MND Association, etc. but at the end of the day, much of it will be down to me personally.
In the meantime I have been busy designing gadgets which will not only help me but also other people with weak hands – arthritis sufferers, stroke victims, people with Parkinson, etc. My latest idea is for a feeding frame which can be very inexpensively mass-produced and, which I believe, will be of great interest to hospitals, care homes etc. or to anyone having care of infirm geriatrics.
While I was in Australia I had a videoconference with my team leader of XXWorks and she appeared to be very enthusiastic and encouraging. It is an exciting project.