25 June 2009

Posted by DMC on 25 June 2009 in Diary |

I am due to have my quarterly MND assessment on 2 July when I will finally be able to make up my mind whether I am likely to be fit enough to go to China and give my lectures in October. It all depends how much further my hands and arms weaken in the meantime. I noticed, particularly in bed last night, what difficulty I was having pulling back the bedclothes. I had to use a combination of closed fists and elbows. Also, getting up from the floor following my morning exercises, the only way I can now manage it is to get onto my elbows. Strangely enough my right hand is now more useless than the left but the arms are the other way around.

Feeding is OK as long as the food is cut up, I can use a spoon. Most drinking is through a straw as most glasses are too heavy for me, although I can still cup a wine glass. Driving is fine in my automatic as I can still curl my fingers.

My greatest fear is getting locked into a public lavatory – in the train or in someone’s offices. Locks with a circular knobs are the worst.

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