Comments on: Christmas Day 2009 http://www.dmarkcato.com/2009/12/25/christmas-day-2009/ Dying to Live Mon, 06 Feb 2012 09:31:59 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: DMC http://www.dmarkcato.com/2009/12/25/christmas-day-2009/comment-page-1/#comment-160 DMC Sun, 10 Jan 2010 14:11:09 +0000 http://www.dmarkcato.com/?p=507#comment-160 Dear Paula Thank you so much of your kind comments. even if 50% of those diagnosed with MND die within 14 months -- which is what we are told -anything that improves the quality of their life, even one day, is worth passing on.one of the key objectives of my blog is to bring a smile to the face of another MND sufferers and that is the reason for the anecdotes,jokes and video clips,many of the latter being immensely inspirational. As to the '63 portI have every intention of drinking it myself as I am far to meanto leave it to my son-in-law! I'm sorry to hear about your dear husband, there must be something somebody can do to make whatever time he has left more fulfilling for him. if you have the time to read the carers comments on my recent trip to China. I think they will make you chuckle and realise how different carers see life from the cared for. My thoughts are with you and your husband. We are all blessed to have loving families. Mark Dear Paula
Thank you so much of your kind comments. even if 50% of those diagnosed with MND die within 14 months — which is what we are told -anything that improves the quality of their life, even one day, is worth passing on.one of the key objectives of my blog is to bring a smile to the face of another MND sufferers and that is the reason for the anecdotes,jokes and video clips,many of the latter being immensely inspirational.

As to the ’63 portI have every intention of drinking it myself as I am far to meanto leave it to my son-in-law!

I’m sorry to hear about your dear husband, there must be something somebody can do to make whatever time he has left more fulfilling for him.

if you have the time to read the carers comments on my recent trip to China. I think they will make you chuckle and realise how different carers see life from the cared for.

My thoughts are with you and your husband. We are all blessed to have loving families.

Mark

]]> By: Paula Barnard http://www.dmarkcato.com/2009/12/25/christmas-day-2009/comment-page-1/#comment-159 Paula Barnard Sun, 10 Jan 2010 12:41:03 +0000 http://www.dmarkcato.com/?p=507#comment-159 I really enjoyed your description of your Christmas celebrations and so glad you are able to enjoy it so much. We don't always have to feel guilty for what we have. I'm sure you do your part to help those less fortunate than yourself in some way or another. As for the 63 Port! I should drink it as soon as possible whilst you are still able to appreciate it. As for your comments regarding info from other MND sufferers and the help available, I think that because so many people die within the 2-5 years there is nothing in place for those whose disease is progressing very slowly.There does not seem to be a category for them to be put in regarding anything. My husband is too young for this or too able for that or hasn't got the right symptoms to be helped by a specific organisation! Anyway, I enjoy reading your diary and long may it continue. We had a lovely Christmas too with the family around us. Thank goodness we have them. Paula Barnard. I really enjoyed your description of your Christmas celebrations and so glad you are able to enjoy it so much. We don’t always have to feel guilty for what we have. I’m sure you do your part to help those less fortunate than yourself in some way or another. As for the 63 Port! I should drink it as soon as possible whilst you are still able to appreciate it.
As for your comments regarding info from other MND sufferers and the help available, I think that because so many people die within the 2-5 years there is nothing in place for those whose disease is progressing very slowly.There does not seem to be a category for them to be put in regarding anything. My husband is too young for this or too able for that or hasn’t got the right symptoms to be helped by a specific organisation!
Anyway, I enjoy reading your diary and long may it continue. We had a lovely Christmas too with the family around us. Thank goodness we have them.
Paula Barnard.

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