12 May 2009
Up to London again today to Arbitration Club lunch. Stupidly I went to the wrong branch – Bishopsgate instead of Fetter Lane. When I discovered my mistake I grabbed a taxi and was only 10 minutes or so to late. The members are getting used to see me wearing my wrist splint and eating with my funny spoon and fork. This will prepare them for the time when one of them has to feed me.
After lunch I went to Waterstone’s, the bookshop in Piccadilly. I was curious to know if I would be able to buy E-books with my book vouchers. The answer was that I could, but first I had to have the value of these vouchers transferred to my Waterstone card. Then all I need to do is to go onto the net, give the number of my card and then download the book. It will be fun to try but I gather that the number of books available this way, at the moment, is rather limited. I forgot to ask Waterstone’s whether there was a comprehensive list, of these e-books, somewhere.
On to the Landsdowne club, off Berkeley Square, where I met my lovely for tea and a snooze before going to hear son Miles give up a talk to The Honourable Society of Cymmrodorian (the Welsh) at the British Academy, in Carlton Terrace. I was proud of him, he did well.
I had walked from Fetter Lane someway towards Piccadilly before catching a bus. Then from Waterstone’s to the Lansdowne Club, then to and from the club to Carlton Terrace. A lot of walking, probably 3/4 miles in all and to be honest I felt it in my legs. I really think they are getting weaker or maybe it is, as my dear wife suggests, what I should expect at almost 75 years old.
We ended the day back at the Landsdowne for dinner with the entire family. Karl, Chloe and Kimberley joined us after the talk. Not only a celebratory dinner for Miles, following his talk, also an early party for Chloe, whose birthday it is tomorrow.
Al and I made a dash for the train around 10 and got home at about at 11.30. I wasn’t sorry to get into bed.
13 May 2009
I noticed yesterday, when I was tidying up before dinner, that I could only just get my right hand up to push back the hair over my ear. This is new and I just wonder how aggressive is the deterioration in my arms.
I started the day, as I have done for very many years, doing my morning exercises. These started when I’ve suffered badly from trapped nerves in the lumbar region of my spinal core (lower back pain). More recently, following the cancer operation, I added the pelvic floor exercises which have become more imperative since I knocked out the AUS. For details on these exercises, basically designed for back pain sufferers, download this file in pdf format – I have not included details all the pelvic floor exercises – mainly of interest to incontinence sufferers – but will happily pass these to anyone who would like them. The reason for mentioning this now, was not to prove what a great guy I am doing exercise daily, but to point out that exercise 13 is becoming progressively more difficult. I suspect it will not be too long before I am unable to raise my arms above the floor.
My great excitement today was having my toenails cut out at the local community hospital. There is no way I could do this myself now, and my dear wife, who is 70 next week, cannot manage either. This is a free NHS service for the ancient and elderly like me.
20/22 May 2009
Al and I went to stay with Chloe and family overnight in preparation for Al’s 70th birthday celebrations.
On Thursday morning we boarded the river bus at Westminster pier and enjoyed a 40 minute journey, with commentary, to Kew Gardens (Al’s Choice). At lunchtime I took the whole family out for a decent lunch and then with me having a snooze in the sun, outside the Orangery Restaurant, and the rest of the family tramping about the gardens, we called it a day. I wasn’t sorry as I had really enjoyed myself but I did notice my legs were feeling rather leaden and I was not able to walk as freely, and as far, as I might have done in the past.
On Friday I took Chloe and the birthday girl (along with little Lara) to the Dulwich Art Gallery to see the Sickert Exhibition. Frankly, it was not to my taste and I much preferred the free permanent exhibition. Lunch, in the street near Chloe’s home and then back to Clavering. A happy time.
23 May 2009
A quiet day at home after all the birthday excitement.
I decided to listen again to a very interesting discussion which it taken place on Radio 4. (Saturday 16 May) in the Unreliable Evidence series – entitled The Law and Death.
The subject matter was of particular interest to me as it dealt with the practicalities, morals and ethics of assisted suicide. Not that I am contemplating doing away with myself in the immediate future but there may well come a time as the disease progresses.
The discussion was led by Clive Anderson (CA) and I have paraphrasing those parts of it which are relevant to me and perhaps to other sufferers who might reach a point in time when they would rather die than continue in their present condition. I should stress that I have transcribed as faithfully as I can what the particular participants said. I have deliberately not put these comments in quotes as, due to my own physical limitations, I find almost impossible to write and therefore may not have recorded precisely every single word correctly.
It was such an interesting and relevant discussion that I was hoping to be able to include it as a permanent Link to this blog but having spoken to the office of the producer of this programme it was explained to me that there are all sorts of complications of copyright etc or with the BBC.
However having said that their kind lady from the producers office very kindly offered to send me a CD of the programme and said that it would be perfectly in order for me to copy this to others. Any reader therefore who would like a copy of the full discussion, if they would send me a CD stamped and addressed envelope I will happily burn a copy for them.
My address is Lantern Thatch, Wicken Road, Clavering, Essex CB11 4QT
The participants were Lord Bingham (LB), erstwhile Lord Chief Justice and senior Law Lord; Sir Ken Macdonald QC (KM), past Director of Public Prosecutions: Philip Havers QC (PH), who represented Diane Pretty and Alistair ?, The Official Solicitor (OS).
CA started the discussion by considering what the law said about going to Switzerland, which permits or even encourages assisted suicide.
The panel were specifically invited to consider this issue in relation to the Diane Pretty case and express a view as to the legal authorities on the agonizing decision involved and comment on whether they considered the law needed clarifying on the right to die.
CA reminded us that Diana Pretty had suffered from MND and sought a decision from the DPP to say he would not prosecute her husband if he were to take her to Switzerland for assisted suicide.
PH.
Said the case was not satisfactorily resolved. He thought it a disappointing result as although she could have lawfully committed suicide, had she been able to do so physically, the very disease that led her to want to end her life prevented her from doing so and, as the law made it a criminal offence to assist someone to commit suicide, she was unable to do that which she would otherwise have been able to do. The law let her down.CA
To KM. If you get your husband, or a relative, to help you, can the DPP say I will not prosecute? But you are reluctant to give that undertaking in advance.KM
It’s difficult, if not legally impossible, to given immunity from prosecution in advance, which is what I think Mrs Pretty was asking.Debbie Purdy, in contrast, was asking for clarification about the circumstances in which the discretion would be exercised, one way the other. She had MS and wanted to clarify the suicide law.
There is a two stage test for decision to prosecute cases. The first stage is, is there sufficient evidence to point to a realistic chance of conviction?. If there is, then would such prosecution be in the public interest; and this second stage has always been extremely important.
CA
The first stage does not really apply if someone says it is something that they really wanted to do, i.e go to Switzerland or pass me the pills, etc. – would this be against the law and prosecuted as a criminal offence?KM
Sometimes, in these cases the evidential stage was not passed and, when it became matter of public interest, as indeed it was in the case of Daniel James (the young rugby player who was severely injured and who wanted to die but was not terminally ill). His parents took him to Switzerland and the DPP office decided it was strongly against public interest to prosecute them.CA
You are the only prepared to take that decision once facts are I known, i.e not prepared to exercise that discretion in advance.KM
No. Each case has to be looked at on its own terms. Cases differ widely in circumstances and I think it would be dangerous, and wrong in principle, for the DPP to issue a policy statement in advance that it would not prosecute an entire category of cases. This would be usurping the function of Parliament.LB
The law should accord with public opinion so far as can be achieved as to where the line should be drawn.CA
In 1961 suicide was no longer illegal. Nobody could be prosecuted for helping someone to take their life.(CHECK THIS!!)LB
What the law has to try to achieve is something between a person’s right to do as they wish with their own life and the other view that life is God given and therefore cannot be taken away.CA
In the Diana Pretty case she was concerned that she did not want to live out life to the bitter end. She wanted to end it in a way that if it involved other people then they would not be prosecuted. What was your feeling about this case?LB
The House of Lords (and below) were asked to interpret the European Convention on Human Rights which imports a right to life and the excellent argument ….. do we also have a right not to live? The question was, was that what the Convention meant?We concluded that was not the case and the European Court agreed with us. That does not mean that the law will remain there forever. Human judgments on these questions develop over time.
PH
I am not surprised we lost but ….our main argument was on Article 8 of the Convention, where the right of self-determination is found. The Strasbourg court agreed that Article 8 protects rights to self autonomy and that’s the right which pretty well supports the view that there should be a rule which does not prevent others from assisting you to commit suicide. Where the European Court disagreed with us was in saying that a state is justified in having a law which prevented others from assisting you to commit suicide. That was a reasonable state of affairs for the European Court to take.CA
For general considerations preserving people from undue pressure and things like that.PH
Exactly, and that’s where circumstances may change in the future.In fact, if you take opinion polls they have consistently, and over a number of years, been consistently in support of a change in the law which will permit assisted suicide under very strictly controlled circumstances with plenty of protective measures for those who were seeking assistance, so as to ensure that no one was put under undue pressure.
CA
It’s an odd situation where someone can be prosecuted for assisting someone for something which is no longer a crime plus this option that you can go to another country. Is it okay to help someone to go aboard when you know full well to go to Switzerland is for death?PH
This shows the law is in a mess. The financial option is not a available to everyone nor indeed do people wish to die in unfamiliar surroundings without their family.LB
English law does not meet public opinion. It may be reaching a point where the law needs overhauling.KM
I cannot detect any parliamentary enthusiasm for changing the law. Last time it was debated it was defeated overwhelmingly.When I was DPP we had 90/95 such cases and we did not prosecute one of them .. on public interest grounds.
Even if the law was changed people would still have to go through a police investigation as in all cases of death there has to be some sort of investigation. For example, in the Daniel James case no law would protect the parents because in his case he was not terminally ill.
The above represents around one third of this discussion programme and I would strongly advise the reader to listen to the entire debate (see above for access to CD) particularly as, in paraphrasing what the participants said I may have inadvertently put a slightly different slant on what they were trying to get over.
In summary it seems to me that the participant’s view was that public opinion seems strongly in favour of a change in the law but the legislature seems to have no stomach for it.
The rest of the debate was dedicated to such matters as abortion, mercy killings and euthanasia none of which, I hope, are relevant in my case.
24 May 2009
I was fortunate enough to be invited to Twickenham today for the Rugby Sevens.
It was the most beautiful day and we sat busking in sunshine sinking the odd beer or two. England played magnificently and made it to the final against New Zealand. Unfortunately we have to leave after the semi-final and I did not get an in time to watch the final which was apparently a nailbiter. England were 19-0 down at half-time and got back to 19 all at the end of full time, then scored a sudden death try in extra time.
A great day out but not the same party spirit as one gets at the Dubai Sevens which I’ve been fortunate enough to go to for the last six years. Although I had very little to drink and sat around most of the day I was pretty exhausted by the time I got home at eight o’clock.
25 May 2009 – Bank Holiday Monday
Clavering Village Fete. This has now become such an attraction that thousands of cars converge on the village and the whole thing has lost its rustic charm. When we first came here, 45 years ago, bowling for a pig literally meant that, if you won you took home a dear little piggy, no doubt to raise it, fatten it and ultimately eat it. There was a beer tent selling home brew – pretty potent stuff too – and tugs-of-war between the local village teams. Now the whole thing has become far too commercial with people selling garden furniture, jewellery and the like. For the first time since we came here I gave it a miss. Maybe I’m just getting old but I really did prefer the simpler fete of olden days.
My great excitement today was to see my kindly sewing lady. Although I’ve had most of my trousers fitted with Velcro flaps at the top and a key ring on the fly zip, I am finding it increasingly difficult to take down and pull up my underpants. So I decided I would get her to sew a tape loop onto on each side, into which I can insert two fingers which I believe will make the process easier for me whilst I still have some use in my hands, which are undoubtedly getting weaker by the day.
26 May 2009
Geriatric golf day at Worthington. Due to the inclement weather few turned up but I did brave the rain and walked round 15 holes and enjoyed the OAP lunch with my old golfing mates after having given them much gratuitous advice during the round!
Richard Bamford had his beautiful black lab with him and I must say it made my heart ache for the loss of my own old lab., Woody. My lovely wife says that I may have another dog when I finally swear I have given up international travel (am I not there already?). I suspect it will be some tiny terrier as opposed to a lolloping lab but any dog would be better than none.
I must say there are all very good in helping me with my shoes, tie etc. and chopping up my food. Most all of them have had small children at some time or other and are used to that sort of thing. Legs still working O.K. I had intended to make this the unveiling of the kilt but decided that it was a bit chilly and breezy and would leave it for a warmer day. Perhaps next Tuesday.
27 May 2009
My golfing mate Peter Southwick came this morning to look over the feeding frame. Like the nurse and occupational therapist who came recently he was kind enough to say it was a very good idea. He came up with a couple of very good suggestions for improving the design which I shall certainly follow. After that the question of how we marketed it after testing it in situ perhaps, in hospital or a care home.
It has been pointed out to me by my good friend Richard Morris, the blog designer, that I wanted to have click links to my Bionic Gloves and the Feeding Frame but I have decided that these will not become active until I have refined both products.
After Peter left I went up to London and had lunch with two of my sons’ contemporaries, both of whom I know extremely well and who were kind enough to shout me an excellent lunch which included some splendid wines, as Simon is in the trade. I disgrace myself coming home by falling asleep and missing my station. My darling wife, as always giving, did not make too much fuss about picking me up.
29 May 2009
Today this blog officially went live. Within minutes some people responded with very kind wishes. I have a little more tinkering to do it to get as I envisaged it but on the whole I’m quite pleased with the way it is has turned out.
30 May 2009
An update on my wash’n’dry loo. It works like a charm but unfortunately for me, being such an impatient soul, the whole process takes a little longer than I would normally like – the dry takes three minutes!
However I have is this problem licked as I can speed read one chapter of Kingsley Amis’s One Fat Englishman in the time it takes!