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18 January 2010

Posted by DMC on 18 January 2010 in Diary |

We received a very welcome telephone call from Richard today. He has been released from hospital with a relatively clean bill of health. At least that’s his version of it! (They’re a tough breed these old naval types). We will just have to keep our fingers crossed (and everything else!) Jodie, from AbilityNet, came today […]

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16 November 2009

Posted by DMC on 16 November 2009 in Diary |

The new lap top and software, supplied by the generosity of AbilityNet, arrive today.  Hopefully, I will not have to wait too long for someone to come and install it and give me the half day instruction which has been offered.  In anticipation of this new installation I have now given away my old PC […]

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4 September 2009

Posted by DMC on 4 September 2009 in Diary |

Today a courier arrived with an oximeter for me to use in preparation for my visit to Papworth Hospital next Monday. I believe that they are testing for any possible weakening in my diaphragm which will ultimately affect my breathing. All I have to do is to wear a clip,  overnight, on my forefinger, attached […]

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14 July 2009

Posted by DMC on 14 July 2009 in Diary |

Despite the late night in Cambridge I managed the early start necessary for me to get a lift to the golf club for my weekly walk around with the geriatrics. My legs are still working reasonably well, if somewhat more leaden than they used to be. I cannot say the same about my hands and […]

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1 July 2009

Posted by DMC on 1 July 2009 in Diary |

One of my readers, for whose opinion I have the highest respect, suggested that this blog would be more useful to patients and carers if I were to be more honest about my feelings. I’m perfectly happy to do so but, of course, do not want to fill these pages with doom and gloom. That’s […]

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5 May 2009

Posted by DMC on 5 May 2009 in Diary |

All went according to plan with the good doctor and Alice put him on an early train to Stansted Airport this morning. I went to London to the Arbitration Club lunch and committee meeting. I just managed it, but had some difficultly in filling the car with petrol. I almost had to ask somebody else […]

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28 March 2009

Posted by DMC on 28 March 2009 in Diary |

Three useful gadgets arrived today on permanent learn from AbilityNet. A carrot shaped vertical lever mouse with a left kick button on the top. Pretty easy to use and certainly easier than my built-in laptop mouse. There also appears to be a foot controlled version with which I’ve yet to get to grips. They also […]

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26 March 2009

Posted by DMC on 26 March 2009 in Diary |

I had my quarterly assessment with Dr. Allen and his charming support nurse, Joanna Sassons at Addenbrookes today. I asked the doctor to take an educated guess as to when I’m likely to lose the use of my hands completely. He thought perhaps six months for the left-hand, and shortly after that the right-hand.. I […]

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25 March 2009

Posted by DMC on 25 March 2009 in Diary |

I had a ‘remote assist’ call today with Abilitynet, the computer assistance arm of the MND Association. The senior assessor, who made the call, was extremely helpful and will be sending me some aids to improve my use of voice activation. She is now ‘on the case’ and as my hands grow weaker will provide […]

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