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16 February 2010

Posted by DMC on Feb 16, 2010 in Diary

Today was a red letter day for the blog when the number of hits exceeded 200,000. It is now running in excess of 1000 hits a day, something in the order of 30 to 40,000 hits a month, so presumably someone, somewhere is gaining some comfort or benefit from it which, as I have explained at the beginning of the blog, is its main objective — to give comfort to the sick and the depressed in the hope that that in reading my story and dipping into the anecdotes, jokes and video clips of others who are worse off than themselves, who have magnificent overcome adversity, they will realise even a have something to be thankful for.

Since I have suffered from this disability I have found, on the whole, people  are mostly  wonderfully understanding and helpful. An example of this occurred today when Tim Reynolds, a partner in a major city law firm, who is, the chairman of the Arbitration Club, came to my office and devoted a whole day into assisting me to prefer some documentation in connection with the marking of the examination I set following my last visit to China in October. What a generous act from an important busy lawyer.

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28 February 2010

Posted by DMC on Feb 28, 2010 in Diary

Delicious lunch with Ali & Graeme Macrael. Going out for a Sunday lunch is such a civilised pastime, today sadly, greatly underrated.

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17 – 29 March 2010 Anantara Resort, Hua Hin Thailand

Posted by DMC on Mar 29, 2010 in Diary

After a comfortable car journey to Heathrow I was transferred to a wheelchair which made travelling long distances around the airport considerably easier. I was even put on a platform hoist to avoid me having to battle with the aircraft steps. One of the considerable advantages that all wheelchair passengers enjoy ease to be whisked through the Foreign Diplomatic and VIP security and passport channels with a minimum of physical inspection.

I must say I was very impressed with Qatar airways. Comfortable wide seats which went quite flat and on which one was able to sleep for an hour or two. A shortstop at Doha, which in many ways was a welcome break and then onto Bangkok. Our prearranged taxi met us at the airport and 2 ½. hours later we were in our usual rooms, around 11 in the evening.

One of my greatest fears, concerning the success of this holiday, was how I would cope with the steps. Our lagoon house rooms were  located on the first floor, up two flights of stairs. This, in effect, involved at least six traverses a day. Down for breakfast in the morning; up to change for the morning on the sun bed, then down again; up again at lunchtime to spend the afternoon on the couch on the balcony; down again to catch the evening bus into town for supper and then finally up again for the evening video and whisky before retiring to bed. Amazingly we managed very well. The good doctor placed his arm under my armpit and clapped his hand to my right wrist in a vice like grip. I felt completely safe and we managed the up and down stairs, and many other smaller flights,  in this fashion. I commend the doctor’s grip to anyone with weak legs. There was only one slight  alarm on the steps when I caught my toe but with the doctor hanging on there was no likelihood of a fall.

Of course, I telephoned ‘my lovely’ everyday as I have tried to do over the last 46 years, wherever I found myself somewhere else in the world. I must confess however that much of the conversation, when she was in Cornwall, was dedicated to who I’ve now come to call St Michael. ‘Wonderful, incredible, marvellous’ , echoed the ladies in Cornwall, my wife,  my sister-in-law, my niece and my mother-in-law it was reminiscent of a chorus from grand Opera (the Nuns chorus). Of course, all of those adjectives apply to the good doctor without whom I could not possibly have even contemplated such a holiday and to whom I owe eternal gratitude. However, the effusive approbation did lead me to ponder, for a second or two, on the ‘cared for’. Not me in particular but any patient who relies almost entirely upon the good service of another. To be a good carer therefore you have to understand the desperate frustration and loss of dignity felt by the patient at not being able to do the sort of thing that he has always done for himself in the past. Or, when he is struggling to do something, the immense amount of effort required to accomplish even the simplest of tasks cleaning his teeth; turning the pages of the book or picking up a piece of paper.

Another area of concern was what would I do it at night if I wanted to go to the loo. The good doctor had made it clear that he would be happy to be woken by one of the two alarm systems with which we were armed – the walkie-talkie and the emergency button that I had  strapped to my wrist – and come and assist me.

I am glad to say that I devised a method of getting out of bed by myself on the two occasions when I’ve needed relief during the night but on the other 10 nights, despite a full bladder, I managed to hang without disturbing the good doctor’s beauty sleep. I suppose the ability to contain such a large volume in the bladder could well be down to the miracle of the artificial urinary sphincter. (See  May 2008/Jan2009 entry).

The only true incident of the holiday occurred when I managed to roll off my sun bed and crack one of my lower ribs — no big deal, any idiot could managed to do that but it was very painful for a few days, particularly, in the bed at night.

I was also concerned as to whether I would be able to continue to be feed myself but except for one occasion when my right arm was too weak and useless, by using my left arm under my right arm I could use the lift the spoon to my mouth, albeit occasionally spilling a bit on the way.

So the holiday assumed very much the same pattern as that described in the previous anecdote ‘China and Thailand, except, on this occasion the good doctor seemed to have less work to do and was happy to sit with me on the basking platform in the morning, under an umbrella, as he is no sun worshiper, reading his book and keeping an eye on his charge.

As I am unable to hold a book I resorted to audio books, which my son-in-law kindly gave to me, and I must say I was very impressed. The only problem is lying in the warm sunshine with a voice droning in one ear tends to make one  doze off, from time to time, and therefore inevitably missing vital parts of the story.

One innovation, since last time was our method of communication which I mentioned above. ‘My lovely’ bought some robust looking walkie-talkies from John Lewis which means that the good doctor and I could communicate with each other across the lagoon and, if necessary, from room to room. An added aid was an emergency wrist switch which sounded an alarm to a monitor. So between the two devices I felt fairly safe, although to be honest, we rarely had to resort to either.

Evenings were spent very much as before but with fewer visits to Danush, the Royal Boss tailor, as it would have been longer to walk to our favourite restaurants. The first night we went to the Onn Onn  corner restaurant and then alternated between that, Smile Moon and the Bam Bam before taxiing home for a video and whisky. Our video on the first night was Gathering Storm a fascinating film about Churchill before the war. The next night we watched a romantic film about the life of Keats, ‘The Bright Star’. A beautifully made film directed by the same person who did The Piano but which frankly was not really to my taste and therefore I confess I nodded off from time to time.

Although I promised myself I would not start detailing the food we ate, as I did this comprehensively in the earlier anecdote, I cannot resist just describing the first couple of meals. I had five or six enormous grilled tiger prawns with fresh tender squid and crispy vegetables in an oyster sauce and  a plate of mixed seafood fried rice shared with Mick.

I rather gave up drinking beer, to avoid my tadpole-like silhouette becoming more pronounced, than it is, but on this occasion and I drunk half  a bottle.

Mick, on the other hand, is on a diet, determined to “lose his spare tire”, so he had a bottle of still water which turned out to be twice as expensive as the beer and six times the cost, litre for litre, than petrol! Total cost, including the expensive water, less than £8. Compare that, for example, with my favourite starter at Sheekey’s in London – scallops wrapped in bacon – which would cost half as much again.

Almost, without exception, the weather most days was very kind to us, in the mid thirties and not too humid. However, three days before we left,  we woke up to an overcast sky which became more threatening as the day preceding until it erupted into a torrential storm. At the time we lying on our sun beds, by the lagoon pool. After stowing our belongings beneath the beds,  we  lay, with knees akimbo, buffeted by the wind and  the steaming tropical downpour, like  stranded naked toads, unblinking on our huge waterlily sun beds. It was an exciting and pleasant experience.

The extraordinary thing about these trips to this resort is that we always seem to manage to meet at least one interesting couple with whom we strike up a friendship which endures beyond the holiday. On this occasion it was an Australian couple, Christopher (Chris) and Beres Hogan, from the Gold Coast, Queensland Australia.  Chris is an artist who paints  large colourful abstract paintings using chrome acrylic. He was under contract to the hotel to give  painting lessons both to adults and children and appeared to be very popular. He sold several paintings while we were there so, although they were not entirely to my taste they were clearly attracted to others.

He was certainly a very nice guy. A bit like a chubby semi-bearded Rolf Harris with a ridiculous little hat, covering his shorn head, which, no doubt, was his trademark. Wife Beres, a former engineer, was a very bubbly, blue eyed blonde. Still very attractive despite nudging 60 and having gained a pound or two. They came to our room  one evening and shared some wine with us and we saw them on a number of other occasions where we enjoyed their company. Chris’s  website is www.christopherhogan.me, where you can see his paintings and judge for yourself.

Chris showed us an art book by an incredible man called Chuck Close, who lost the use of his hands, after becoming an established name in the art world, who then changed his style of painting by strapping brushes to his arms and painting in tiny squares, rather like digital photography, with a startlingly effective result. I’m going to try to get a short video of this artist for my blog to inspire others to follow his example.

Sunday night proved to be  our last night although we were both convinced that we were not leaving until Tuesday. The problem is one loses all sense of time particularly when one crosses  time barriers. Anyway, the hotel manager, Tim Boda, who has become a good friend after so many visits,  very kindly offered us they free meal so we spent the evening by the edge of the sea enjoying a really delicious buffet supper in an enchanting surrounding.

It happened to be the evening when Thailand had agreed, in common with the rest of the world, to switch off as much electricity as possible as a gesture towards saving the planet. We therefore sat in darkness from 8.30 to 9.30 in the light of a bonfire on the beach and a semicircle of flares, with an almost full moon and other smaller flares and fairly lights here and there in the garden and candles in glass jars on every table. It was a truly magical setting, watching the moonlight heightening the surf,  some quarter of a mile out to sea, enhanced with soft live Thai music. A wonderful end to what had been a very successful holiday, I hope for the good doctor as well as for me.

I arrived  with a pale paunchy companion and left with a slimmer, suntanned model who had managed to build up his daily swimming routine to 50 laps and reduced his daily calorie input to little over 1000 and, as a result had, no doubt,  lost several pounds in weight. Compare that  with me who did not hold back from either food or drink and as a result  increased my tadpole-like silhouette – large round tummy with skinny appendages – not a pretty sight  A little touch of envy perhaps from someone who has always been reasonably slim  and fit but also admiration for the good doctor’s steadfast adherence to his diet.

Having finished this account I then received a note from the good doctor who had apparently penned a note of a ‘Day in the life of a Carer’. Which I must confess I read with a degree of humility. I have reproduced it below, virtually unexpurgated, as I believe it to be sensitively written and sharply perceptive of the carer’s role which is all too often overshadowed by the sympathy shown to the patient.

What did I do to deserve such a friend. In his account of a similar visit last October, the good doctor described me, admitted with a degree of affection  as ‘an intolerant impatient old bugger’, or words to that effect. I was determined, on this particular visit, to be more attentive to his needs and exercise a greater degree of patience. I leave the reader to decide whether or not I succeeded.

The doctor’s version.

THE ADVENTURES OF A CARER  AND HIS FRIEND.

But first:

‘The Master’ as he is affectionately regarded by the Carer,  his friend of more than 50 years,  clearly, is the more important part of this   equation of “Disabled” and   “Carer”. After all  it is he who has to suffers the disease along with its threatening implications; profound indignity and loss the of freedom it entails.

But why “The Master”?  Certainly he directs the Carer (or rather he believes he does!) – but more important – he is very much in command of his own life.

His courage is exemplary.

He suffers with a quiet dignity and is more concerned about the suffering of others. His determination is inspiring and never flags.

He enjoys every minute of his life and is always seeking new adventures.

He does not waste time and is always active, even when sunbaking!

He is determined to be as independent for as long as possible.

He “..accepts what lies ahead”.  (Poem written by Sir James Darling).

He is  aware of the beauty in nature as well as of his fellow man.

He is generous and gives continually to others who are similarly afflicted. A series of his inventions to help the disabled are in development. More will appear.

His thirst for knowledge continues and is prevalent in books, music, nature and the arts.

He has an ability to laugh at the most dire of situations including his own. His life is a ‘beacon’ for others and this is reflected in his blog,  www.dmarkcato.com

All disabled folk have these and other qualities in differing proportion. It is these features which add to the privilege of being able to help them. Caring adds immeasurably to the life of a Carer. It is work, but not regarded as such. It   is an incredibly inspiring and fulfilling role

THE ADVENTURE.

It all began, quite simply, with an offer, by the Carer, to come to The Master’s home in Essex, England, for two weeks or so in order to help. In particular, he sought to benefit the constant and devoted, “number one” Carer,  Alice, The Master’s loving wife (‘my lovely’). Rapidly, The Master  developed this simple plan, into a “holiday in the sun”. Not Crete, nor Spain or other closer climes, but Thailand and his beloved Anantara Hotel Resort in Hua Hin, on the Eastern coast, south of Bangkok.  With his restlessness the, times were advanced to March. The Carer agreed and presented himself for action in Clavering, on the 16th March.

They set forth to Heathrow. The Master, as usual,  for airline travel, was impeccably dressed. Insisting as ever, in travelling with a jacket and artificial rose adorned with artificial drops of water (explaining that live roses cannot  be safely moved between countries) and a tie, appropriate and colourful shirt and flannel trousers. Hair impeccably brushed.

QATAR Business, proved equal to their excellent reputation.

There is a world of wheel chair operators at airports. A forgotten army of helpers, not readily evident, until you  need them. They are a caring and patient lot who cope with urgent toilet stops, duty free shopping and ungainly packages and aids. Moreover they know the fast routes through Immigration and Customs.

The Master, once on the aircraft insists with a degree of urgency for earphones to be applied and some film be set in motion.

He talks loudly and frequently has to be reminded to speak more softly “and stop shouting”. A thrust of his feet into the air indicates  it is time for his shoes to be removed and travel socks applied. The first of his champagnes arrives served in his plastic feeding cup, with handles and a long straw. He requires dressing for eating. This involves fitting his long apron “don’t ruffle my hair” and with “unfolded” napkin to protect his trousers beyond. Right wrist support with Velcro straps and Mackintosh sleeve arm protector on his left forearm arm. The latter useful as he uses his left arm to elevate the near flail right arm and hand with a fork (his favourite and most useful implement) or spoon, to his mouth. A pusher is effectively snared into the protective sleeve on the left forearm. With appropriate gyrations on his part most of the meal arrives in his mouth- leaving a trail of ‘ruin’ on apron, napkins and the floor.

Drinks, if not in a bottle (which can support a straw) must be delivered in one of his coffee stained plastic mugs – a less stained mug and corresponding long plastic straw is required for the lighter coloured drinks including champagne, gin and tonic or whisky.

After a two and a half hour journey by taxi from Bangkok the pair arrive at Anantara Hotel Resort, Hua Hin.  In spite of the heat and humidity “His Lordship” insists on re applying his jacket and rose in order to present himself at Reception. “Very Nice” is all that is heard from the welcoming staff. He then complains of the heat!!

The most fragrant breach of cross infection rules came with the repeated use of the same bright yellow handkerchief (usually to be seen protruding prominently from his jacket) to blow his nose. This continued for days. He had never heard of the disposal of a handkerchief once used, or the more modern use of tissues for this purpose. The Carer muttered repeatedly about this oversight but it was not until he called it a “flyblown rag” that progress was made.

The Master constipated “because of 24 hours of travel” ended up groaning on the loo. Great success was followed by a “compulsory” shower. “ But ‘my lovely’ only showers me every second day” brought no reprieve. In spite of a now blocked toilet, this vestige of the British Empire fell asleep. The Carer was exhausted.

A DAY IN THE LIFE OF TWO FRIENDS AT ANANTARA.

The Carer rises at 05.30  for ‘quiet time’. Swimming and walking. Shave, shower and everything out of way and then enters The Master‘s cold, air conditioned room next door (The Master alternates between the extremes of heat in direct sun and  the freezer like conditions in his room). He has shaved and “done my exercises” by the time he is rolled out of bed (07.00), nightgown removed. Pee followed by cold wet flannel to face-dry. Dress in bathers making sure you scoop up all the ‘apparatus’ in front. (There is nothing so disconcerting for a Carer than to see a Master in public, with a testicle or something else,  silently protruding!)

Trousers. He leans on The Carer as these are fitted one leg at a time. They must be done up at the correct height “not too tight and belt on second hole” where it is uselessly loose.

Shirt. “Not the top button”

Hair. He likes it long and closely applied. Water and comb finishing with a brush.  Frequently when out, he asks about his hair and  instructs for it to be straightened. He is keen to avoid the “mad professor look”, a look The Carer secretly enjoys believing it entirely appropriate.  For more formal occasions he demands “Boots-Firm Hold-Wet Look” a tacky blue gelatinous mixture the Carer applies with scorn.

Hessian bag with   appropriately modified eating implements (spoon and fork with various twists and large handles which he has devised or modified), apron, wrist support and left forearm sleeve. The Carer earnestly trying to recall what is required before the alert Master interferes. It becomes a game for The Carer who built up speed with time and an economy of movement to anticipate requirements before being reminded by The Master.

The Carer opens the bedroom door and they advance onto the world. With a firm grip of his arm the Carer escorts The Master down the stone steps. This is essential as The Master is no longer able to support or protect himself in a fall. On odd occasions the Carer would forget his charge only to look back with chagrin to find The Master perched , forgotten, on the top step.

They walk slowly to breakfast the Carer in front then doubling back to talk. The Master’s walking is now slow and measured, limited by weakness in his legs and some shortness of breath. In the dining room hordes of adoring and attentive staff descend. Porn, Por, Tarn, Beer are some of those who compete cheerfully with the Carer. They scamper around to fetch orange juice in plastic mug with long straw; a fruit platter on a “large” plate covered with muesli. The Carer is then off to “steal” fruit and orange juice for The Master’s lunch. The Master is  critical of the Carer eating so fast, little realising that the poor fellow is flat out helping and fetching things  for his friend.

The Master is helped up from the table calling for “two bits of brown toast” and walks trailing his apron and other bits to where various eggs are being cooked. Poached eggs, omelette or scrambled eggs -“not overcooked or too dry” he says with predictable regularity. Staff escort him back with his prize added to which are five slices of “streaky bacon” “the Swedish loin bacon is best with less fat though admittedly less tasty”. The Carer is then required to place all this on a half “exactly” slice of the toast with “just a sliver of butter” – then chop it up in order for it to be consumed by spoon. The Carer though, when time is short, resorts to hand feeding. Quick spoonfuls, allowing little time for protest.

Clean up (wiping his chin) and place equipment  into the Hessian bag. Chair out, help him up and off to his room (818 with the extra windows – the Carer next door in 817). It is necessary to lift The Master from low positions. At the foot of the stairs The Master routinely rests. “I’ll just rest a minute”- reduced to his impatient seconds,  before launching upwards with the Carer providing support and lift usually to the right arm which he holds in a vice like grip. (More effective and safer  support was identified by having the crook of the Carer’s left arm supporting The Master’s  right axilla or armpit while the Carer’s left hand also gripped The Master’s right forearm. Straight back, as always, for the Carer!).

One fall occurred when The Master in his enthusiasm (to be independent) missed a step. He fell in a crumpled heap legs twisted beneath. The 73 year old Carer was only just able to sort  out the mess and lift The Master’s dead weight to the vertical.

Into the room and the removal of all clothes – the default  dress for this man- is requested (demanded).

Off to the loo while The Carer charges around to prepare the Hessian bag for the day’s activities. The Master’s nose disconcertingly, always runs after breakfast when on the loo. The yellow handkerchief is ‘out of bounds’ and he is provided with tissues!

“Ready” from the bathroom is a reminder of childhood days. The low toilet demands a hefty lift to remove the occupier (who otherwise could be imprisoned in that position all day). Tidy up and a shower if decided by the Carer. A little whimper  again, perhaps to register  his recall of less frequent showers at home. Should he ‘win’ “Baby Wipes”

Teeth. Bloody teeth! The “morning sunshine brush” has been left in England, thank God. Listerine swill.- then by a series of contortions the instrument is introduced into his mouth to disperse the applied toothpaste. Then out again and with more contortions and much grimacing the thing is turned on and somehow arrives back in his mouth. “Thirty seconds each quadrant” seems like an eternity and The Carer has  learnt to more profitably occupy his time at this stage.

His bathers are reapplied with the usual precautions and the Hessian bag checked. “Stolen” lunch fruit is placed in the fridge and a bottle of water and orange juice is set aside for drinks at the pool with ice served with loving attention provided by the hotel staff.

Down the steps again with support and  then walk slowly with The Carer walking in front but waiting to help at bridges and other obstacles. Water and juice are given to the hotel staff and The Master is escorted to his favourite (and hottest spot). The mattress on his sunbaking couch is doubled in order to facilitate his standing unaided. (This though resulted in a fall when, with enthusiasm, he launched himself onto his belly only to rebound onto the decking – causing a painful blow to his chest). Subsequently another couch was always  placed beside the former.

The oils are applied as before. “All over and rubbed well in”. “50% protector for cheeks, nose and forehead” and finally lip salve for his lips. Earphones and the selected Penguin Talking Book; glasses, hat and then The Carer, after some 2 hours of constant attention is free (at about 09.30) until ; The Master is too hot and/ or the CD has finished.

The burning heat  has caused little blisters on his chest. “They are not blisters but imprisoned sweat”  he states emphatically, quite oblivious of the definition of a ‘blister’. Shower, with the garden shower results in the use of some “50 gallons of water”.

“It is not wasted and goes on the garden and there is no shortage of water in Thailand”. Not exactly true, according to  the Thai newspapers. Following the shower (and he can still operate the handle type taps-but with plenty of grunting!) he sidles up to the  outside bar for drinks of “stolen” orange juice, water and supplied “crushed- no not the bigger pieces” ice,  provided by the staff. Characteristically he will talk to anyone who pauses nearby. He is, though, particularly interested in the staff and delights in discovering their backgrounds and thoughts.

Back to resting in a slightly cooler spot and more Penguin Talking Books are set in motion. A magnificent collection. The Master has read  all of them many times. “I do not snore and I have not been asleep” he announces after a prolonged period of  obvious deep sleep accompanied by snoring, while listening. Already he has devoured “Crime and Punishment”, Fydor Dostoyevsky;  “The Mayor of Casterbridge”, Thomas Hardy and now “Middlemarch”, George Elliot, (the last appropriately read by a woman, Harriet Walter). Soon he will be into Dickens – “even though I know them backwards – I began to save for them, first on a paper round,  when I was fourteen. I purchased the complete edition of Dickens- I still have them”.

He and The Carer sit and talk. He smokes and The Carer checks with others it is OK. The banter between  The Master and his friend covers wide territory. It evolves about the true definition of words and their use;   the life cycle of a pineapple or that of a banana. John Keats and the relationship with his friend Charles Armitage  Brown, their poetry, and that Keats was only 26 years when he died  (1795-1821) and so on. There is no shortage of topics or of interest.

Shower and another “fifty gallons” and he is cooler and ready for the escorted trek to the room. Help is necessary. He could not get there without assistance.

Back to the default dress position – ‘starkers’. He sits on a towel when sitting on the bed and every day, at.13.30 hours, precisely, his telephone call to his ‘lovely’, who has been visiting family in Wales and Cornwall.

Then lunch. “stolen” pineapple and pawpaw. Coffee brewed in the machines provided. He has a good appetite more so at airports. The Carer quietly eats a few bananas and green looking mandarins which prove delicious. They sit together on the balcony sipping coffee, chatting happily, and The Master smoking another Villiger cigar. ( The Carer fetches the cigar and holds it to the mouth of The Master, who, with a ‘slurp’, wets both ends . One end is poked in his mouth and then this bomb like thing is lit before being inserted into his (own design) cigar stand. Then he reads a book supported in a wooden reading frame (elastic bands holding the pages).

Limited sleep at night requires him to rest for an hour or so in the afternoon ostensibly listening to more of the Penguin Classics. The Carer attempts to rest .The Carer now realises that when The Master states, as he frequently does “I must do” so and so, it is really a strong suggestion for The Carer to do ‘so and so’, and to get on with it! These though, are regarded as the murmurs of a restless soul still yearning for independence.

16,00 hours “have you ordered the ice” indicates he needs a drink. Usually gin and tonic with bits of left over orange juice but later at night, whisky and ice. More interesting talk and debate and another cigar. Dress him. Slacks “not too tight” shirt “top button undone”, shoes and then the bloody hair all over again.

Eased downstairs to the hotel bus and into town on the 6 o’clock bus,. Various tourists are interested in the pantomime which occurs. It is amazing  how many of them wish to talk or offer a brief “goodbye” or “have a great day”. This caring business is infectious.

In Hua Hin, The Master and Carer walk slowly to one of their favourite restaurants. The food is excellent and cheap. It is amazing how The Master is recognised from previous years and  is viewed with genuine concern  by those who know him.

Taxi home to Anantara. High 4 wheel drive (easier for the disabled to enter and leave than the more fashionable Tuk Tuk or lower  seated sedan) . Same drivers each night makes it fun. They are helpful and cheery.

Back to  room 818  by 19.15 hours and to the default dress position!. DVD’s brought all the way from Australia by the film deprived Carer only to be greeted by The Master indicating he had seen them all “many times before”. Whisky smoothes the evening.

Teeth, and that ruddy machine sometimes during a film. A Pee-goes on forever, but is under control.

Nightshirt with 50,000 buttons. He has relented and not all have to be done up. Into bed with razer, ready for the morning, “unplugged” (he is no longer able to unplug it from the charger) next to him together with extended backscratcher and emergency buzzer. BBC World News blaring forth and still going when The Master is awakened at the beginning of the following day.

This has been the  routine for ten days.

The Carer in his brief moments alone, has been reading. He is overjoyed to find his thinking in accord with Michel De Montaigne. (28 February 1533 – 13 September 1592). See, “How to Live. A life of Montaigne”. Sarah Bakewell. Also Donald Frame’s “Translation of Montaignes Essays- The Complete Works”.Montaigne understood Caring and  he too applied it   to his  close friend of six years, Estienne de La Boetie who died suddenly of the plague 18 August 1563. (The Master was born on 18 August!) Thereafter Boetie, in spirit, was closely involved with Montaigne’s life

So too, for this Carer and his friend. The Carer, now, has become much more observant of the needs of his friend and  those of others. A wonderful gift. The Carer has learnt to mould the needs of The Master onto those of his own. Good  caring requires the close and constant observation of the needs of another. Anticipation is a vital ingredient. This is not new and surely should be a requirement of normal living. Caring is a  privilege and involves  real sharing and honesty. The honesty though is more for the disabled person who is stark in their situation. Caring, as with The Master, can be fun. It involves  teamwork.

On the last night, Anantara and Tim Boda, the Manager, generously presented The Master and The Carer with dinner and wine, under a full moon on the beach. The walk home, though, was long and difficult. It seemed as though both friends were supporting the other. In fact they were, much as they have for more than 50 years. Soon, though, it became clear, that one through weakness and shortness of breath had to rest every 20 paces or so.

They returned to England . The Master to the “number one” Carer, Alice. The other, “number two”, quietly “rode off into the sunset” basking in the joy  and warmth of his role and what it had meant to him. Realising,  it is he, who had gained most from this adventure.

He will return.

So, was I tyrant or saint? Certainly St Michael deserves his new title.

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April Fools’ Day 2010

Posted by DMC on Apr 1, 2010 in Diary

Delicious lunch with the Sands-Rentons, in Saffron Walden.

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Good Friday 2010

Posted by DMC on Apr 2, 2010 in Diary

Alison and Roger Musker dropped  in for morning coffee on their way to see one of their children at Bassingbourne. Alison, who was at Sherborne with Alice, has made quite a name for herself as a watercolourist and Roger, having already produced a book listing the entire works of Mozart, is now working on a similar study for Hayden. An interesting couple.

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6 April 2010

Posted by DMC on Apr 6, 2010 in Diary

The first truly spring-like day, sunny and bright but a chilly wind. I joined the geriatrics this morning and by sharing a buggy with Griggsy was able to walk and ride alternately and in this fashion probably walked about half of the course, albeit in a slow plodding fashion. There is certainly a noticeable deterioration in my legs over the past few weeks.

Those of you who have read the good doctor’s account of our recent visit to Thailand will realise what a demanding role is a carer’s job. I have been constantly amazed at how much care I need, for example, just for my Tuesday visit to the golf club, from the moment I am picked up in the morning to be taken to the club, either by Sir George or Peter Murphy, strapping me into their car, with my bag full of accoutrements etc and on arrival at the club being dressed up to brave the elements on the course by any poor soul who happens to be standing about. Out on the course, whenever my legs got tired, I was offered and accepted frequent lifts in Tony Griggs’ golf buggy. Later, after divesting me of my outdoor clothes and changing my shoes, usually then fetching me a drink in my two handled mug with its special straw; lighting a cigar and making sure that it’s placed properly in my smoking stick before we go into lunch. Somewhere between all of this having a pee and accosting any passing member to adjust my trousers. – today John Tilbrook was the lucky one.

Then there is the whole business of the apron, the wrist support on one hand and wipeable sleeve on the other, and so on to attend to, even before I consider what food I’m going to eat, which is usually fetched by others. I make no distinction, any passing member or member who finds himself sitting next to me gets lumbered with the task, as did David Robson and John Gray yesterday. Poor David got in a terrible muddle with the wrist support but he will learn. All of this is so typical of the members of this wonderful golf club any of whom would be interchangeable with those who kindly assisted me today. That’s why this has always been, and continues to be, a very special place for me. We are truly a family of members.
The sort of kindness which is really touching is when the boys see you’re having a bit of a struggle toward the end of the meal, as happened yesterday, David Robson on one side and John Gray on the other, without any prompting, started scooping up the food and fed me. Finally there’s the day removal of all the gear to attend to before I am kindly chauffeured home. It just goes to show that without all these little touches of kindness there is no way that I could possibly attend the geriatrics golf day on Tuesdays. I am deeply grateful and take nothing for granted.

Patrick and Gillian William-Powlett brought her three children to tea and to visit Mouse, the donkey.

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11 April 2010

Posted by DMC on Apr 11, 2010 in Diary

An expected treat today, lunch with the William-Powlett’s as Judith’s 92 year old mother Beryl was visiting. Delicious food, as always with the WP’s and stimulating conversation, much of it inevitably about the possible outcome of the general election – Beryl still has all her marbles and is good company.

There was also a little drama when we reached home after lunch.Alice  was rather too keen to get me out of her car and I slipped below my centre of gravity and got stuck. Fortunately young Michael Pomfret was with mother, Doreen, our long-term neighbour across the road, and came instantly and helped to heave me up.

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4

A Special Entry – The Great London Swim

Posted by DMC on Jul 3, 2010 in Diary

This is a one off special entry, as you can see relating to The Great London Swim, in which hundreds of generous young people will be swimming for various charities. The event is taking place in the Royal Docks on 3 July. Some members of The Arbitration Club, and other friends have very generously agreed to swim a mile each for the MND Association. They’re kindly calling this “3 Miles For Mark”. Obviously, for such a worthy cause we are seeking as many sponsors as we possibly. I have personally e-mailed a great number of people, in the UK and other parts of the world where I am known, in the hope that a few of them will support us. You can get all the information you require about this event from the following sponsorship forms: Three Miles for Mark – sponsorship form – revised 16 03 2010 Three Miles for Mark – sponsorhip flyer- 16 03 2010 From this you can see that you can either make an individual donation, or better still, download the other form and the elicit donations from friends and relatives or sympathisers of people who have had contact with loved ones who have suffered from disease. Having collected those donations yourself you can then make a single donation using the other form. This special entry will remain at the top of this blog until all the promised donations have been collected. I thank each and every one of you, in advance, who kindly respond to this appeal.

Post event Note

The swim was a great success see 4 July entry. I’m keeping this special note on the blog for the time being as we ar,e still in the throes of collecting in pledges and there is still time for anyone who has not yet made a donation, who wishes to do so to do so direct through clicking on the above link.

DMC 8 July 2010

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